7 Years, 10 Months ... And others too

Someone I love had a mastectomy today. We were not to share the news when we were told. We were not to talk to family or friends. It was their private news. Typing these words I think of how hard it was to carry the secret of my husband's illness for too many years. Him and I alone knew. They warn me not to share like I have a secret and I gain power from knowing it. It is not the power it is the load. Can I not share this load? I am sad for you and for me. I am sad and need a hug. But you tell me to carry it alone. I wonder if I was married if I would have the same restrictions?

When his illness was obvious and we shared with family we took the optimistic road. He was going to live. If we remained positive and did all the steps then we could return to our lives. I smiled. And I cried alone in the car. I wanted to be optimistic. I did not want him to know that it had any negative effect on my life. So when I was in pain I carried it alone. When I was scared I pushed it away.

I worry for my friend and their family. Will they stay optimistic and positive even in the privacy of their own bedroom at night when the children are sleeping and the door is closed? Will each one of them be forced to carry their fears alone, too afraid to share, too afraid to break the pack of positiveness to cry with their own mate, to voice out loud they are scared, to voice out loud that they don't want them to die? For one to voice out loud that they don't want to die, that they are scared of dying? I think of times, the looks my husband and I would exchange, the ones that said I am scared as if exchanging glances across a dinner party table. I was envious of my friend who talked to her husband about dying, was it cowardice, pessimism? Oh, to have had him make a video to me, to his children, to have a recording of his voice, his snoring. That would have brought so much comfort in the beginning. We were optimistic.  We were positive.  He died non-the-less.

We are not to talk of the 'c' work in cases that did not go well and positive. The face slap stings. Again another reason why I am not allowed to talk about a part of my life. I can not mention my husband or I am living in the past. I have to block over ten years of experiences from my life. Now I can not share because my husband was not a survivor. I hate all the talk that surviving is an accomplishment. What does that say about the non-survivors? Was our positive attitude and optimism not quite enough? Did we let a drop of doubt spoil our thoughts? Did we falter in being vigilant of our thoughts and attitude? Did we miss the bar that allows survival because of our optimism? Did the cancer sense my tears in my car down the street? Did it double its attack when the thought of being alone sneaked into my head before I banished it?  Did we fail, so he died as a result?  Will I kill you if I say it will be scary and I am here if you need a hug?

When he did died I was traumatized.  I had convinced myself that he would live.  It is all we talked about, the positive outcome and what we would do after it was all over.  I had convinced myself.  Then when I was standing alone I cried.  I wanted to hug him when he was scared.  I wanted to tell him what a wonderful life he gave me.  I wanted to curl up behind him and wrap my arms around him and cry and for him to cry and to hold each other as our tears fell.

Is it nobler to be optimistic or to be realistic?  Is it so wrong to say I am positive and yet I am still frightened?  I can not believe that in their hearts they are not scared.  Why is it so wrong to hold the one you love above all others and say 'I am scared.'


I am angry that you dismiss my experience because it turned out badly.  I am angry that you imply that we were not optimistic and positive enough for him to survive.  I am angry that your illness makes me sad and I have to pretend again that everything is fine.

2 Years, 1 Month - The Widow's Vacation

I am sitting on Wailaa beach with my old roommate from Maui who has just arrived. One of my oldest friends has been here for a week and is leaving tomorrow. I have been here thirteen days. I have barely been to the beach three times. We hiked the bamboo forest in Hana to two waterfalls with a mutual friend who moved to Maui. We brought one of my husband’s rubber ducks and let it go. Wish I remembered their names. He had three travel ducks, one female and two males, all named. Though they appeared identical at first, they all had a little marking that allowed him to identify them, a color misprint on the bill or a stain from traveling. When we packed for vacation, he would stand in the hallway at his disorganized bathroom shelf, and line up the ducks. He would hold each one and ask himself who would go on the trip. He asked himself aloud and with me nearby. Then he would choose one to pack in his backpack. We were so immature. Nevertheless, those childlike ways made us laugh, and maybe not feel so old among the approaching death, commutes, overtime, mortgage, and ex-wife.
I took one of the ducks and put it in the river by the waterfall. My long time friend took pictures. The duck took off, floating sideways, and we turned to hike back. We passed a break in the bamboo and the friend that lived on Maui said, ‘There he is!” I missed the rubber duck as he floated downstream. We searched for him when we had to cross the river but he was either upstream or had passed us.
I fell into depression for three days after his birthday and the anniversary of his memorial service. My girlfriend headed to the beach alone. I stayed home on the computer. We did go to the beach with our Hawaii friend. She chose some music to play in the car. The one song, one that was on the radio a lot when he died, one about love and loss and wanting to go back. The tears streamed. I was silent. My head turned towards the rolled down window, watching Hawaii roll by. The Hawaii I loved and where I had lived twice. The place we had tickets to go finally with my brother and his family. The tickets we cancelled but did not request a refund in hopes we would go when all the cancer was over, the chemo, the radiation, doctor appointments, the pain, sleeping, the social security forms.
How could I be so foolish? Why was I so hopeful? How could I have been so naïve? In retrospect, I see my husband knew and accepted his death. He protected me by leaving my hope. I thought I was protecting him by not giving up, not losing hope, staying strong, crying alone in the car. All we did is hurt ourselves by grieving and suffering alone. We tried to protect each other and only left each other alone in the worst part of our lives, our marriage.
I am jealous of the widow who cried with her husband, of the ones who could crawl in bed with them and hold them. I am jealous of the wives whose dieing husbands wrote letters to their children or made recordings. Oh, I wish I had his voice, his movements, to view again. I do not even remember his laugh. I know the details of his face will fade from memory as time disintegrates our time together and I slowly replace the framed photos with newer ones. Will I remember his flat jean pockets, his hairless chest, the sight of his bull legs, and the memory of the first time I saw him standing at the foot of the bed? Will I forget his kisses with the mixed smell of Right Guard deodorant, T-gel, sweat, cologne, and Lubriderm?
I know this will happen. I can only remember another love’s face if I think about it and the face shifts and is blurry, finally settling on a face from a photo, a one-dimensional memory.
Why do I have to let him go? Why do I have to move on? Would he have moved forward? I think he would only work and fall asleep in front of the TV. He would work so he was exhausted, could sleep, and had no free time to be alone, time to fill-up with things he would have rather done with his wife. Would he have moved? Would he have dated by now? Would he have purposely died too?
He used to apologize for leaving me, for leaving me alone in grief and not being able to be there when I was old and sick. I told him not to be sorry. He was the one dieing, the one that lost the stick draw. He knew. He knew because he faced the truth I was ignoring.
Couples surround me here in Maui, newlyweds, old couples. All of those happy and in love couples walking by me. The old couples make me the saddest and jealous. Maybe they hate each other back home. Perhaps they cheat, stay late at work to avoid coming home, fight, bicker, sigh of the boredom and routine. The life path that finds them standing in a kitchen, maybe one they can not afford, one that needs remodeling, one in a neighborhood they hate, one that constantly needs cleaning or plumbing repairs. Nevertheless, here for that week or two of their lives they escape, are relatively happy, and have glimpses of the one they used to love. I sit alone with just grief and some old friends.

4 Years, 9 Months - Your Death

It is the fourth season of Christmas since the last time I watched his chest lower, heard the last beep of the heart monitor, felt his energy crash into my chest, filing the space between my back and front ribs and once fully contained rushing with force up my spinal cord and shooting out the top of my head.
I knew without looking at the monitor, I had kept reminding myself not to watch just be with him, that the line was flat. He was gone now. I knew with finality. Then I looked and watched the flat line move across the black screen eating the mountains. The line moved fast erasing all that was left of his life. When the line devoured the hills and the mountains and conquered the screen, I looked away. I saw his older brother holding his left hand. The world was still. I heard his mother say we should get him ready. I replaced the head that had been my husbands away from my bosom back onto the hospital pillow and turned to look at his mother who held his right hand in both of hers. She told me to close his eyes. I knew how to do it from training by books and movies. I ran my fingers over his eyes bringing the eyelids to rest before brushing my palm against his cheek stubble. Why had I not shaved him when he asked? He never let me shave him even when I had asked in the shower. Because after that moment was gone, he no longer wanted to be groomed. I took the wet towels away. We had used towels to prop his head straight on the pillow when he no longer had the strength to keep it from falling forward. He would make the sign for rain to tell me to pour a pitcher of ice water on his head. We had not been able to replace the towels after the last rain. I tried to close his mouth but it would not close. It was set open in a gruesome tilted manner. I was sorry that his daughters would have to see it this way.

2 Years, 2 Days - Regrets of a Daughter

I cried for mom today.

I cried for all the missed opportunities. She took care of grandma for so long. Then grandma was gone and we were both widows. I thought we would go to North Carolina. Perhaps the first of many trips together.
She had such a kind heart and I waited until she was dieing to realize it. She said since I was 18 it was a few phone calls a year, a visit for half a day every few years, an odd holiday. How sad. How selfish. I just thought she would always be there. Of course that is what I thought. I was so busy in my life. She was a picture in my head, mom at home. I did not think I needed her. I did not even think I liked her. Yet, in those few days before the pain medication took over her thinking, I really loved her. I wanted so much for her. I could have done so many easy, little things to make her life better. I was her oldest daughter, her baby girl, and I shunned her. I talked bad about her. I avoided her.
I moved in with her when she was dieing out of love and caring for her, not out of any sense of duty. I knew first hand, or rather second hand, how scary it was to die. How she could not possibly live alone with cancer. It was then I saw what a truly beautiful women she was and I realized she had always done for others. She was such a loving soul. I truly miss her. I sadly miss the relationship that could have been if I took the time for her, or judged her as an adult, if I did not listen to anyone else but saw for myself if I enjoyed her friendship. I have lost again. I have lost my husband. I have lost my mother. I realize I have also lost the chance of having a close, loving relationship with my mother.

I am adrift, alone, and the tears drip from my cheeks and run off the edges of my nose onto my husband’s sweater.

5 weeks - Regret

I read your autopsy report today and wailed. I thought of your shoulder injury and could picture the thin line running vertically when they described it. I could see your healed midsection scar from a childhood appendectomy like me. I was at peace to know there was so much cancer everywhere. I felt less regret for saying yes to stop the care aimed at curing you. Still, I wonder if we stopped chemo too soon. Was there any hope? Could we have at least gotten you to the ocean? I think now how you kept asking me to go to the water - the ocean, a pool, a hydrotherapy bath. How I could not help you. How I kept promising you ‘maybe tomorrow’. You were unable to speak. You had not spoken in maybe a week. When your family asked me how long it had been since you could talk I could not answer them. I did not notice that much because we could still talk without words. I know you. You know me. I know your looks and what they mean. Plus you had incorporated basic sign language symbols we had learned from our one-year-old nephew visiting you. We also used scuba diving signals. The sign to surface became the sign to raise the bed. To dive together side-by-side meant for me to come closer to the bed. Sign language for milk was a request for Ensure. The sign for rain meant to pour ice water on your head. I knew you wanted to get in the water when you made the sign language for fish on your last day. When I said maybe tomorrow, you said ‘oh well’. As if you knew there were no more tomorrows. Did you say this with your eyes, a shrug, a tilt of the head? I don’t recall because to me it was the same as if you spoke the words. I think of holding your head to my chest as you left, of telling you I would look after your girls, and I loved you. I said ‘I love you’ with such deep sadness as your heart rate continued to drop and you stopped breathing. I felt you go. When I looked a the heart monitor the flat line was eating the mountains like a Pac Man. I am lonely. Yet, not as lonely as before I met you. I am more at peace now. Now, that someone has loved me unconditionally, without fear, without jealousy, without their selves first. You loved me first and then your self and I am at peace. I am sure my loneliness will grow without you ever coming back home. I will be so lonely to go places without you especially the places we already had tickets for, the places we had planned, that we had scheduled to take off work, all the places we had on our list. How I miss you pumpkin. How I wish we had years and years. I fear I am sick too. I wonder what I will do. I am scared. How scared you must have been.