7 Years, 10 Months ... And others too

Someone I love had a mastectomy today. We were not to share the news when we were told. We were not to talk to family or friends. It was their private news. Typing these words I think of how hard it was to carry the secret of my husband's illness for too many years. Him and I alone knew. They warn me not to share like I have a secret and I gain power from knowing it. It is not the power it is the load. Can I not share this load? I am sad for you and for me. I am sad and need a hug. But you tell me to carry it alone. I wonder if I was married if I would have the same restrictions?

When his illness was obvious and we shared with family we took the optimistic road. He was going to live. If we remained positive and did all the steps then we could return to our lives. I smiled. And I cried alone in the car. I wanted to be optimistic. I did not want him to know that it had any negative effect on my life. So when I was in pain I carried it alone. When I was scared I pushed it away.

I worry for my friend and their family. Will they stay optimistic and positive even in the privacy of their own bedroom at night when the children are sleeping and the door is closed? Will each one of them be forced to carry their fears alone, too afraid to share, too afraid to break the pack of positiveness to cry with their own mate, to voice out loud they are scared, to voice out loud that they don't want them to die? For one to voice out loud that they don't want to die, that they are scared of dying? I think of times, the looks my husband and I would exchange, the ones that said I am scared as if exchanging glances across a dinner party table. I was envious of my friend who talked to her husband about dying, was it cowardice, pessimism? Oh, to have had him make a video to me, to his children, to have a recording of his voice, his snoring. That would have brought so much comfort in the beginning. We were optimistic.  We were positive.  He died non-the-less.

We are not to talk of the 'c' work in cases that did not go well and positive. The face slap stings. Again another reason why I am not allowed to talk about a part of my life. I can not mention my husband or I am living in the past. I have to block over ten years of experiences from my life. Now I can not share because my husband was not a survivor. I hate all the talk that surviving is an accomplishment. What does that say about the non-survivors? Was our positive attitude and optimism not quite enough? Did we let a drop of doubt spoil our thoughts? Did we falter in being vigilant of our thoughts and attitude? Did we miss the bar that allows survival because of our optimism? Did the cancer sense my tears in my car down the street? Did it double its attack when the thought of being alone sneaked into my head before I banished it?  Did we fail, so he died as a result?  Will I kill you if I say it will be scary and I am here if you need a hug?

When he did died I was traumatized.  I had convinced myself that he would live.  It is all we talked about, the positive outcome and what we would do after it was all over.  I had convinced myself.  Then when I was standing alone I cried.  I wanted to hug him when he was scared.  I wanted to tell him what a wonderful life he gave me.  I wanted to curl up behind him and wrap my arms around him and cry and for him to cry and to hold each other as our tears fell.

Is it nobler to be optimistic or to be realistic?  Is it so wrong to say I am positive and yet I am still frightened?  I can not believe that in their hearts they are not scared.  Why is it so wrong to hold the one you love above all others and say 'I am scared.'


I am angry that you dismiss my experience because it turned out badly.  I am angry that you imply that we were not optimistic and positive enough for him to survive.  I am angry that your illness makes me sad and I have to pretend again that everything is fine.

6 Years, 9 months

There have been so many changes in my life trending negatively. Always in the background is wishing for you. You to hold me, you to tell me it will be alright, you to help me make decisions, you, who would have never let these things happen to me, to us.

6 Years, 2 Months - Alone

I cried today. The tears started falling and then I let it go and sobbed for a minute. It is times like these that I really miss having a husband, a sounding board, a champion for your side, someone to give advice, someone to hold you when things go bad and when it feels like you are standing alone. My family has more than abandoned me. They have condemned me as inept, lazy, a liar. I miss you honey. I would not be in this mess if you were still here yet, even worse, is struggling through my troubles alone and not knowing if I have made the right decisions. I miss you dearly.

Sister, Mom, Husband - Need

I saw Shutter Island with my friends tonight. Leaving in the car I cried for my sister and what I have lost with her due to her mental illness that did not occur until her late 20s. Then I felt such a longing for my mom. My life is in a lot of turmoil with major decisions required and soon to face substantial personal losses. I have been under extreme stress for six years and the grief for my husband was only the beginning. If I cannot have a husband to comfort me and provide me guidance it would be nice to have a sister which leads me to really needing my mommy.

6 Years, 9 Months - Stepchildren

I am feeling very lonely tonight. My stepdaughter came to pick up her dad’s yearbooks. Her husband stayed in the car. She moved to this area with her mom so she could be by her dad. Her mom still lives her too. I only see my daughter a few times a year. She comes over, never sits down, and picks up things of her dads and then leaves. I have not seen her sister in years. The last time I saw her was at a family funeral and we never even made eye contact. She stayed in the living room and front yard and I stayed in the kitchen and backyard. It is not that I do not want to see her. She does not want to look at my face. She cancelled going to the family get-together the following day because I would be there. All the losses weigh on me tonight. Losing a spouse enviably means losing most of his family too. You just do not know this at the time. The morning after his service, half of the large tree in our front yard severed and fell and his family drove away.
I think of my mom. She told me when she was dieing that I only saw her a few times a year for an afternoon, a few phone calls a year, and a random holiday. My life mirrors hers now just like my face.

REVERSE METAMORPHISIS

REVERSE METAMORPHISIS


I was a beautiful butterfly.
You found me when I was a flower dancer basking in the sunshine.
We gracefully soared together towards the open blue sky.

Then the world changed color and the leaves began to fall.
We watched each one float away to finally settle dry.
So soon, the storms of winter came to crash their destruction.

I wandered.
Slowly I stilled becoming a chrysalis that could no longer move.
My wings crumbled.
Wrapped in darkness and quiet, I slept, I cried.
I mourned the days when we were butterflies.


A few butterflies flitted among the spring flowers praising the nectar I no longer tasted.
A ray of summer sunshine would flash its ultraviolet light but I never felt its warmth.
The fall winds tossed me cruelly until winter’s silence again filled me.
I slept, I cried, I mourned the days when I was a butterfly.

No longer cocooned I crept alone outside.
New layers forming as I walked away from the shells discarded.
I searched endlessly to fill the hungry void inside.
I closed my eyes and cried.
I remember the days when we were butterflies.

I turn my head to look up at the sky. I yearn to fly.
I remember the bright clouds and the endless sky.
Yet even now when I cry, I know I am no longer a butterfly.


By Me

5 years, 9 Months - Holidays

Thankfully the holidays are over. Wherever I go I still feel alone. I do not feel as if I am grieving any longer, just lonely and empty. It is amazing how one person can make you feel. I can spend time with the same people yet feel so alone now.

2 Years, 2 Days - Regrets of a Daughter

I cried for mom today.

I cried for all the missed opportunities. She took care of grandma for so long. Then grandma was gone and we were both widows. I thought we would go to North Carolina. Perhaps the first of many trips together.
She had such a kind heart and I waited until she was dieing to realize it. She said since I was 18 it was a few phone calls a year, a visit for half a day every few years, an odd holiday. How sad. How selfish. I just thought she would always be there. Of course that is what I thought. I was so busy in my life. She was a picture in my head, mom at home. I did not think I needed her. I did not even think I liked her. Yet, in those few days before the pain medication took over her thinking, I really loved her. I wanted so much for her. I could have done so many easy, little things to make her life better. I was her oldest daughter, her baby girl, and I shunned her. I talked bad about her. I avoided her.
I moved in with her when she was dieing out of love and caring for her, not out of any sense of duty. I knew first hand, or rather second hand, how scary it was to die. How she could not possibly live alone with cancer. It was then I saw what a truly beautiful women she was and I realized she had always done for others. She was such a loving soul. I truly miss her. I sadly miss the relationship that could have been if I took the time for her, or judged her as an adult, if I did not listen to anyone else but saw for myself if I enjoyed her friendship. I have lost again. I have lost my husband. I have lost my mother. I realize I have also lost the chance of having a close, loving relationship with my mother.

I am adrift, alone, and the tears drip from my cheeks and run off the edges of my nose onto my husband’s sweater.

1 Years, 7 Months - Reminders, Memories

I am stripping the bed to wash the mattress cover. I lean over and look between the bed and the wall. Seeing all those mismatched socks brings tears to my eyes and such longing.
Every morning your alarm would go off before the sun rose. Sometimes it was dark and other times of the year the sun would be rising, with the color changing on the horizon, the lighter colors advancing across the deep blue sky. You would turn off the alarm and quietly sneak out of the bed. I would be awake, but not quite, with my eyes closed. I would listen to the familiar sounds, the creak of the bedroom door then the creak of the bathroom door. Silence for a few minutes, sometimes longer, then the shower turning on. I could tell it was the hot water and then a pause, the sound of the water increasing, as he turned on the cold faucet. Hearing the rings, as the shower curtain moved open and closed, I would drift to sleep.
I would awake again as the bedroom door opened. Rob dressed in jeans and a t-shirt for work. If it was cold his uniform would include a button-up cotton shirt over the t-shirt, blue or green, opened and un-tucked, cardigan style. The air would be damp from the steam escaping the bathroom. He would lean over me. I could smell his Contradiction for Men cologne, his Neutrogena T-gel shampoo, the Right Guard Active deodorant, and Orange Listerine. He would smile. His hair a bit damp but always surprisingly dry since it seemed I just closed my eyes and he was in the shower.
He would shake the covers and straighten them, standing at the foot of the bed, flinging the comforters in the air momentarily losing sight of each other. I would complain of the cold, to leave the blankets alone. He would complain I pulled all the covers up around my head and left my legs bare, that is why I was cold. The last comforter would drift down, floating unevenly between us, wafting his fresh shower scents through the air. He would come to the head of the bed and kiss my forehead, one arm extended next to my ear, the fresh Right Guard winning the aroma contest.
He would smile and say ‘I love you‘. I would smile and say, ‘Be Careful’. I used to worry. He was always so tired from working long hours in the heat with the long commutes. I worried because he tended to fall asleep anywhere, even when driving. I would say ‘Rob’ and he would snap awake. ‘I was blinking’. And I would respond, ‘That was a long blink. Let me drive’ and he would. I worried he would fall asleep driving or be electrocuted at work. Men were always getting hurt, going to the hospital, some died. Rob was always going to the emergency room for himself or taking other construction workers. I would say, ‘I love you, be careful.’ As I drifted back to sleep I would be comforted by the sound of the key in the door lock.
I often still wake at 4:30 or 5:00. The time of the alarm and then the good-bye kiss. I still find comfort in the sound of the key turning the front door lock of our house when I am in bed.
Oh yah, why the sadness tonight? When the covers floated above our heads Rob would playfully scorn me. My socks were always under the covers. Cold toes as I went to bed became hot. He always fished the socks out of the tangled covers and put them in the hamper. To find a collection by the side of the bed, well it just emphasized that Rob was not collecting them anymore. They just gathered dust until I collected them while changing the sheets or dusting under the bed. Rob was no longer here.

5 years, 7 Months: Holidays Alone

It is 5:40pm and I have not eaten all day. This is normal on Thanksgiving because I want a large appetite for the pies. This Thanksgiving I go to the Jack-in-the-Box drive-thru. As I am waiting for my cheeseburger, I can feel the tears threatening to expose my loneliness. Then the unfortunate guy who is working on Thanksgiving will know my life is more pathetic. For now, I want to keep that a secret. When I turn the corner, I see the homeless woman and her dog. Shopping Cart Syndrome is not just a syndrome. I give her all my money, fifty cents. On the trip back home, I push my tongue against the roof of my mouth just behind my front teeth. I look up with my eyes only. These two techniques will usually stop the tears. Finally, the eyestrain becomes annoying and it is hard to see the road looking at my car's headliner. The tears flow and they do not stop. A slight sting in the eye corners, a bit of tightening in the cheeks, some warmth, and my vision clouds over and then clears and I can feel the wet enemies march downwards for another soundless cry

1 Year, 4 Months - Praying to the dead

Honey, can’t you help? Why isn’t it working? I promise I’ll lead a fulfilling life and not just stay inside, predominately in bed. Help me honey.

5 Years, 7 Months - The Holidays

The holidays suck. I just talked to a friend that is a young widow without kids. She was expecting dinner at the in-laws as usual. However, her phone calls were ignored and then she finally got a cold reception when the sister answered. She now realizes she is spending Thanksgiving alone.

Losing a spouse usually means losing more people as well. Who are the in-laws and the stepchildren after death? Legally they are not related to you any longer. Not only have you lost the person that touches every aspect of your life but an entire branch of your family tree is severed. My brother-in-law called yesterday. I was expecting an invite as well but it was just a message to say 'Have a nice Thanksgiving'.
Sure, I have made plans for the past holidays. I don't just wait to be invited. I went to Mexico and ate lobster with two widows in their 20s the first year. I have hosted several holiday dinners and went to a friend's house one year. Nevertheless, there remains the void. You are now family-less. You are no longer married. Basically you are single. Your in-laws remain family at will. Your extended family spends the time with their immediate family - children, in-laws, and spouse. Another holiday season and I will be alone. This year will be Thanksgiving dinner take-out again. I do eat in restaurants alone all the time now. Yet to go out to dinner alone on Thanksgiving or even cook for one is too pathetic. Better yet to pretend it is just another day. Some years are better than others. It is not a straight line forward.
Tomorrow is the anniversary of the day he proposed.

2 Years, Twenty Days - Songs, Alone

One verse keeps running through my head, "I don't know what to do, cause you know I still love you". I sing it over and over to myself like a jewelry box opening and closing its lid with the lonely dancer spinning in circles. I have done three rewinds before I realize it.
The toilet keeps running. I know it is the flap. Isn't anyone going to fix it? Do I call a plumber? Do I go to Home Depot? Do I tinker with it? When did I become so inept?

3 Years - Reminders Everywhere

They all have each other.


I see him everywhere

I think of him all day

Everything is him or us

Just to hear, ‘I am on my way home'